Parents of children suffering from Duchenne muscular dystrophy have met with the Georgian Prime Minister to discuss support for those affected by the condition. According to one of the parents, Zakro Gvishiani, the parties agreed to establish a working format for cooperation, with a new meeting tentatively scheduled for June 5.
“We provided detailed information about the medications, existing problems, and why it became necessary to hold an ongoing protest in front of the government building.
We are feeling positive because the Prime Minister asked very important and substantive questions. We exchanged information. We can already see Mr. Irakli Kobakhidze’s readiness to understand the situation as deeply as possible. We agreed that a working group and a corresponding format of work will be established. At the latest, we will meet again the day after tomorrow to separately discuss the issues we did not have time to cover today.
We also conveyed the message that our process is not politically driven. The main demand of the parents involved in this process is obtaining the necessary medicines. The solidarity expressed by the public was not organized by anyone and is solely connected to the needs of the children.
We have had no contact with pharmaceutical companies, and allegations that any of the parents or organizations are supposedly acting under the influence of some ‘pharmaceutical mafia’ sounded highly unfortunate.
These questions were also answered. It was also explained that there are a number of medications recognized in both Europe and the US, and recently in the UK as well. Information was exchanged on these matters, and the Prime Minister received the necessary details,” Gvishiani stated.